Hello- long time no update! I just got back from Chicago for my 2 year follow up and I’m happy to say my MRIs again showed no new or enhancing lesions! My doctors were very happy with my improvement and progress. I will return to Chicago once a year for the next 3 years- and… Continue reading 2 year follow up!
Here’s a photo timeline of my hair growth over the past 15 months since chemo. No haircuts. No special supplements or shampoos, just my body doing cool things.
Just got back from Chicago and everything went amazingly well. Slept thru most of my MRI thanks to half a Benadryl. Appointment with Burt lasted less than 10 minutes and he informed me my MRIs showed no new or enhancing lesions. My EDSS score has also dropped from 3.5 to 2 in the past year.… Continue reading One year follow up appointment
It’s officially been 365 days. I’ve been doing pretty great- standing for hours at an Ed Sheeran concert and constantly surprising myself with the distances I walk. I still have my hard days, days where I feel weak and tired. I always remind myself how blessed I’ve been and how it’s just a bad day… Continue reading One year!
Leaving Chicago after my first follow up about 7 months post HSCT. MRI was torture per usual. Dr Burt was out of office so I ended up seeing Dr. Balabanov. He informed me my MRI shows no active disease. One lesion seems to have grown from the MRI I had 4 months prior to transplant,… Continue reading First follow up!
Hello! It’s been 6 months yesterday since my stemmie birthday. I’ve been doing okay for the most part. I’ve had a few more weak days than normal as of late. Trying to stay positive and remind myself of all the good progress I’ve seen. Having MS for 4 years, it’s hard not to feel a… Continue reading 6 months
Considering tomorrow is my five month birthday, I figured it was time for a blog post. I am all settled back in Reno. I have already visited Vegas once for Christmas. While I was home we visited a zoo and I was able to walk around and visit animals for over 2 hours without break.… Continue reading 5 months
Things are going pretty good! Spent this past weekend with josh and his family at his brothers wedding. It was a great time beginning to end, and Josh looks super handsome in a tux. Even got some pretty serious dancing in with Josh’s dad- something I was very surprised I was able to do at… Continue reading Day +111
I haven’t updated in a month so I figured it’s time! We are getting close to the 3 month mark, my hair is finally starting to come, but it’s very light. I’m still working on leg strength training but my endurance walking continues to improve. I went to a Halloween party last night and was… Continue reading Day +81
Alexa Kay 